Students in leadership positions learn about brain tumors and gain real world experience in running a non-profit business while raising funds for brain tumor research. Beneficiaries of the money we raise are Barrow Neurological Institute, National Brain Tumor Society, Phoenix Children's Hospital, Translational Genomics Research Institute, and University of Arizona.
"Be the change you wish to see in the world..." Gandhi
ANGEL’S STORY - as told by Angel's mother
On May 4, 2018 Angel Carden was like any ordinary 8 year old boy. He was just finishing up 3rd grade and enjoying the last days of Little League Baseball. After a day on the baseball field, Angel started to have seizures later on that night. We rushed him to an emergency room and a CT scan discovered that Angel had a large tumor growing in the back of his brain. Our world felt like it was ending, we were scared, and we desperately feared for our son’s dear life.
Angel was immediately transferred by ambulance to Phoenix Children’s Hospital, only one of a few places in the country that could properly care for our son. By the time we were admitted the tumor was causing increased pressure to his brain. This caused Angel to continuously vomit, barely speak, unable to move and started to lose his vision. Angel’s neurosurgeon Dr. Ruth Bristol was the one to diagnose our son with Stage 4 Medulloblastoma. She let us know that he had to immediately have surgery for 2 shunts, to relieve the pressure on his brain before any permanent damage was done. We spent 14 days in the Pediatric Intense Care Unit and Angel’s final surgery lasted over 7 hours to remove his brain tumor.
We prayed so much during that time, and had started to meet so many new people that cared for our son as much as we did. After the surgery Angel could barely move or talk, which is common with posterior fossa syndrome. When we left the hospital at the end of May, Angel was in a wheelchair and his Dad had to lift him into our car to take him home. Every day I watch my son defy the odds against him. He went to physical, speech, and occupational therapy; exceeded every goal they set for him in the span of 4 months. Since then Angel has went on to complete Proton Radiation Therapy as Scottsdale Mayo Clinic under Dr. Sameer Keole for about 8 weeks. He now walks, talks, and went from writing with his left hand to right hand. Angel is even going to school when he feels up to it. Angel just wanted to share his story to never give up, and he wants to give back for every child that may be going through the same circumstance that Angel has been through.
PLEASE SUPPORT SSBTR to help Angel and the far too many like him!
“One of the great movements in my lifetime among educated people is the need to commit themselves to action. Most people are not satisfied with giving money; we also feel we need to work.”
— Peter Drucker
A phase I clinical trial that set out to assess the safety of a new combination therapy for a type of aggressive brain tumor has found the treatment to be well tolerated in patients. The trial used a treatment combination of ADI-PEG20, pemetrexed and cisplatin, which showed encouraging efficacy in patients with recurrent high-grade gliomas, a disease for which little progress has been made over the last few decades.
A new study led by Massachusetts General Hospital (MGH) investigators finds that radiation therapy may increase the uptake of therapeutic nanoparticles by glioblastomas, raising the possibility of using both growth-factor-targeted and immune-system-based therapies against the deadly brain tumor
New equipment at Mission Hope Cancer Center is raising treatment there to an advanced level. "This is a linear accelerator stereotactic radiosurgery system that we have just installed here at Mission Hope,” said Dr. Case Ketting, a radiation oncologist, while pointing at the Mission Hope TrueBeam radiotherapy machine.
The aim of this study was to determine the experience of patients with brain tumors and their carers across distinct parts of their treatment pathway and identify their views on potential service gaps in need of addressing.
Just when you thought you've seen it all as a Long Islander, Northwell performs another first. Neurosurgeons at North Shore University Hospital removed a glioblastoma brain tumor using a new imaging tool that transforms the way diseased cells are targeted - the first surgery of its kind on Long Island.
Brain cancer is one of the deadliest cancers. The surgery to remove the tumor is often very invasive. But now engineers at Vanderbilt University have designed a device that can make surgery easier for both doctor and patient, and the same technology also holds promise for lung cancer diagnosis.
